Living With Cystic Fibrosis

Author: Susan Heinrichs Gray
Publisher: Childs World Incorporated
ISBN: 9781567661057
Size: 26.51 MB
Format: PDF, ePub
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Living With Cystic Fibrosis. Presents the causes, symptoms, and treatments of cystic fibrosis.

Jasper S Story

Author: Andy Glynne
Publisher: Franklin Watts
ISBN: 9781445156040
Size: 45.47 MB
Format: PDF, Kindle
View: 4980

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Jasper S Story. This powerful and eye opening picture book uses the first-person testimony of Jasper, a 10 year-old boy with cystic fibrosis. Jasper explains what his condition is, the treatment he receives and the emotional challenges he faces. Using Jasper's real first person testimony creates an intimate and direct tone that will help students to empathise with people's differences. Jasper's circumstances are easily relatable to children; he talks about school, his brother, friends, his hobbies and explains the complications that cystic fibrosis brings to these situations. The BAFTA award-winning stories were originally produced as animations for the BBC. Aimed at children aged 9 and up, these powerful and evocative stories have now been captured in book form as rich, visual testimonies of the impact an illness has on a child's daily life and how they cope and are able to enjoy the life that they have.

Every Precious Breath

Author: Tom Valenta
Publisher: Michelle Anderson Publishing
ISBN: 9780855724078
Size: 51.43 MB
Format: PDF, Kindle
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Every Precious Breath. Tom Valenta tells the story of his two grandsons and discovers that people living with cystic fibrosis and their families are very special people. Their ability to overcome hardships, endure pain and laugh at adversity is inspirational.

Living On Borrowed Time

Author: Debbie Pitts
Publisher: Author House
ISBN: 1452033463
Size: 10.77 MB
Format: PDF, Kindle
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Living On Borrowed Time. My book tells how I have struggled to live from day to day since my being diagnosed at six months of age. So you know I have lived a long time with this disease. It hadn't been easy.

Cystic Fibrosis

Author: Ruth Bjorklund
Publisher: Marshall Cavendish
ISBN: 9780761429128
Size: 42.38 MB
Format: PDF, Mobi
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Cystic Fibrosis. "Provides comprehensive information on the causes, treatment, and history of cystic fibrosis"--Provided by publisher.

Cystic Fibrosis

Author: Anne H. Thomson
Publisher: Oxford University Press, USA
ISBN: 0199295808
Size: 69.61 MB
Format: PDF, ePub, Mobi
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Cystic Fibrosis. This book explains clearly what is happening to the body in Cystic Fibrosis, what causes it and what treatment options are available for the different aspects of the disease. It also looks to the future in terms of potential new therapies for CF and provides useful information on organizations that can provide help.

Cystic Fibrosis

Author: Judy Monroe
Publisher: Capstone
ISBN: 9780736810265
Size: 59.21 MB
Format: PDF, Mobi
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Cystic Fibrosis. Discusses what cystic fibrosis is, how it affects the body, how it is diagnosed and managed and includes information on finding support and living with this condition.

Living At The Edge

Author: Monique Dyson-Dalziel
Publisher:
ISBN:
Size: 42.53 MB
Format: PDF, ePub
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Living At The Edge. This study discusses the narratives of twenty-one young people living with a genetic disease called Cystic fibrosis (CF). It explores how these young people take up subject positions and subjectivities in managing their condition within the medical discourse of CF. The narrative data was analysed using a poststructuralist framework in order to understand young people's subjectivity. This thesis attempts to challenge the positivist view that uses objective measures to assess young people's attitude towards their use of medication to stay alive. It disputes a moralizing stance towards non-compliance / non-adherence and opens up a space to consider young people's attitudes in a different light. The analysis focuses on three main themes in the young people's relationship with the discourse of CF: 'normalization', 'resistance' and 'performativity'. The theme of normalization is taken to mean the ways these young people position themselves to 'pass-as-normal', in their attempts not to be totally colonized by CF. Resistance is taken to mean how these young people subvert the medicalised discourse of CF and use intelligent compliance in their relationship with their medications. The last analysis uses the concept of performativity to understand how young people take up their agency to carve out a livable existence within the discourse of CF. In their acts of agency, these young people did not subvert the medical discourse completely but used it intelligently to constitute themselves. This thesis concludes with the view that, while the medical discourse of CF is necessary and vital to the survival of these young people, this discourse need not dominate them. The study opens up alternative possibilities for engaging with these young people in ways that are not reducible to the powers of surveillance.

Not A Wasted Breath

Author: LaRecea Tabor Gibbs
Publisher: Tate Publishing
ISBN: 1616639350
Size: 27.71 MB
Format: PDF
View: 3825

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Not A Wasted Breath. 'Sis, the worst thing CF [cystic fibrosis] can do is kill me. It can't stop me from living.' Todd Gibbs spoke those words once to his sister and he proved that statement true time and time again. Though cystic fibrosis did kill him five days after his thirty-first birthday, the living he did showed that he had won the battle, even if CF eventually won the war. Not a Wasted Breath is not just a story about living with a fatal disease or waiting for a transplant. That was only a part of Todd's life. He never allowed his illness to rule his life, even in the face of over eighty hospitalizations. This is truly a story about how others perceived Todd, how they were affected by his presence in their lives, and how Todd viewed himself and his existence. In a poignant compilation of thoughts, memories, articles, and journal entries, LaRecea Gibbs, Todd's mother, creates a touching tableau of a life well spent that will inspire anyone to overcome personal obstacles through faith, determination, courage, and most of all, humor. Join mother and author LaRecea Gibbs in an inspiring biography which shows that though Todd's life was short, he never wasted a single breath. This Book is an inspiration to all readers in appreciating the gift of life. The account is thorough, has depth of development, is authentic, and puts us inside the people involved. Not a Wasted Breath enables readers to travel along emotionally. As a result, we count our own blessings. John Hagaman, Professor of English, Western Kentucky University, Director of WKU Writing Project.